A common disease… but still too misunderstood
Endometriosis affects around 1 in 10 women of childbearing age.
It can appear as early as adolescence and sometimes remain invisible for years. Still frequently underdiagnosed, it is nevertheless one of the leading causes of chronic pelvic pain and infertility. But today, more and more voices are speaking out, research is advancing, and care is improving!
What is it, exactly?
Endometriosis is when tissue similar to the uterine lining (endometrium) grows outside the uterus—on the ovaries, fallopian tubes, bladder, intestines, and more.
This tissue responds to menstrual cycle hormones as if it were inside the uterus: it grows, bleeds, and then scars.
The result? Inflammation, often pain, and in some cases adhesions or cysts.
Possible symptoms
Every woman experiences endometriosis differently. Some have no symptoms, while others suffer from intense, debilitating pain—especially during their period.
Common signs include:
- Cyclic pelvic pain (especially around menstruation)
- Pain during sex
- Digestive or urinary issues
- Difficulty getting pregnant
⚠️ Important: The intensity of pain does not necessarily reflect the severity of the disease.
There is no single profile for endometriosis—just a wide range of lived experiences.
A misnamed disease?
Endometriosis is not “just bad period cramps.”
It’s a chronic, hormone-sensitive condition that can significantly affect quality of life.
Yet, getting a diagnosis often takes years—currently, an average of 7 years.
The good news? Things are changing.
Healthcare professionals are increasingly aware, and more women feel empowered to speak up. 💪
Can it be treated?
There is no definitive cure yet, but several options can help reduce pain and improve daily life:
- Hormonal treatments to block or regulate menstruation
- Surgery to remove lesions if needed
- Complementary approaches (nutrition, exercise, psychological support, osteopathy…)
Every case is unique, and ongoing medical care is essential to finding the most suitable solution for each woman.
What about fertility?
Endometriosis can make conception more difficult in some cases, but it does not automatically mean infertility. Many women successfully conceive—with or without medical assistance.
What matters most is being well-supported and well-informed.
Specialist fertility teams can guide and accompany those affected.
Causes still unclear… but promising leads
Research is moving forward!
Experts believe that endometriosis likely results from a mix of factors:
retrograde menstruation, genetics, immune system dysfunction, hormonal environment…
Recent studies also point to possible links with endocrine disruptors or certain inflammatory profiles.
While the exact mechanisms are still being explored, there is real hope for new treatments.
What about the cancer link?
Some studies have shown a slight increase in the risk of certain cancers (notably ovarian cancer) in women with endometriosis.
But don’t panic: the absolute risk remains very low and should not be cause for alarm.
In fact, heightened medical monitoring can lead to more regular and beneficial gynecological follow-ups in the long term.
The key takeaway
- Endometriosis is a chronic condition, but it’s not a life sentence.
- Each woman’s experience is unique.
- Diagnosis and care are improving, thanks to research and open conversations.
- Support, listening, and compassion make all the difference.
✨ YOU ARE NOT ALONE.
You have every right to talk about your pain, to ask for help, and to seek answers.
Your experience matters.
And here, you’re in good company. ❤️